BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million ...

My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.

Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...

Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.

Growing up, I participated in Great Strides in honor of my cousin who has CF. Today, I stride with even more purpose — now for my son, who was diagnosed with CF.

I’ve struggled with my mental health for as long as I can remember, but being diagnosed with bipolar disorder the summer after starting Trikafta made me question how the medication may have affected ...

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS.

As a teen, dealing with cystic fibrosis made me feel truly hopeless. But my life transformed when I had a powerful spiritual awakening.

I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...

Living in rural Virginia has made it difficult to access the care my son with cystic fibrosis needs, but the support of our community and our upcoming move to more easily access care gives us hope as ...