I've been blogging for a few years about misophonia, an auditory/neurological disorder that I have advocated for because I and (more importantly) one of my adult children are affected. Recently, at ...

Your muscles need continuous maintenance to stay strong and healthy. Duchenne muscular dystrophy (DMD) happens when there is a change in a person's genetic instructions that affects the production of ...

Karen Guillmeno’s son, Hunter, was diagnosed with Duchenne muscular dystrophy — a rare genetic disorder involving progressive muscle degeneration — in 2016. The condition primarily affects males in ...

As Labor Day approaches, people keep asking me, "What happened to 'Jerry's kids'?" Even more disturbing, others ask, "Who is Jerry Lewis?" The fact is, Jerry's kids, children who suffer from the ...

This announcement follows a bipartisan letter that Senator Collins and a group of nine members of Congress sent last month to ...

Muscular Dystrophy (MD) is more than a medical condition—it's a journey that reshapes lives. Imagine trying to climb stairs, run, or even stand, only to find your muscles not cooperating. That’s the ...

The Utah Program for Inherited Neuromuscular Disorders (UPIN) improves the lives of men, women, and children with inherited nerve or muscle disorders through cutting-edge, multidisciplinary care and ...

Myotonic dystrophy type 1 (DM1) is the most common form of adult-onset muscular dystrophy, affecting about 1 in 8,000 people.

In the spirit of the holidays, we're looking back on the time the Grateful Dead played a surprise set for kids with muscular dystrophy.

Grants include research funding in amyotrophic lateral sclerosis (ALS), Charcot-Marie-Tooth disease (CMT), Duchenne muscular ...

In November 2025, Epicrispr Biotechnologies Inc. announced a clinical trial is to learn how safe and tolerable EPI-321 is and ...