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This photo provided by Emily’s Entourage in April 2025 shows Emily Kramer-Golinkoff, who has cystic fibrosis caused by a rare genetic mutation, during a trip to Maine. Credit: AP.
“The message is simple: Cystic fibrosis is a fatal, genetic disease with no cure yet. Yes, these women are beautiful, and brave and powerful. Their personal stories are absolutely inspiring.
His latest project “Salty Girls” is a photo series documenting the many ways that women living with cystic fibrosis are beautiful, powerful, and hella sexy. CF is a genetic disease that ...
A few years ago, photographer and art director Ian Pettigrew was diagnosed with cystic fibrosis, a life-threatening and incurable genetic disease that targets the cells that produce sweat, mucus ...
In an effort to put the spotlight on the life-threatening ailment cystic fibrosis (CF), which affects more than 70,000 people globally, Canadian fashion photographer Ian Pettigrew has created ...
New mom Mackenzie Bentley-Moult, who battles the genetic disease, was told she would never be able to give birth. Now, she's worked with photographer Tara Ruby to tell her powerful story.
BIRMINGHAM, Alabama -- Laps for CF has partnered with Over the Edge in a fundraising effort. People that donate over $1,000 can rappel off the top of One Federal Place in downtown Birmingham ...
Those with cystic fibrosis have two copies of the defective gene-one from each parent. ADVERTISEMENT Paul and Amanda's two older sons-Eli, 8, and Ezra, 6-are healthy.
Cystic fibrosis is a genetic disease that damages the lungs and digestive system. Patients often die in early adulthood, but Trikafta is dramatically extending life expectancy. “Every patient in ...